Overview
- Her family said Sydney Towle went peacefully on Wednesday, Aug. 5, after an almost three-year battle with cholangiocarcinoma.
- Towle’s brother announced on Tuesday that she had been moved to hospice and was surrounded by friends and family before her death.
- Over three years she underwent multiple surgeries and rounds of chemotherapy and in recent months participated in a tumor‑infiltrating lymphocyte (TIL) immunotherapy trial reported by clinical sources.
- Towle built a large online community—about 1.1 million followers on TikTok—by sharing candid treatment updates, fundraising for the Cholangiocarcinoma Foundation and modeling in projects like The Chemo Club runway.
- Her public story has raised awareness of young‑onset cholangiocarcinoma, highlighted the limits of current treatments and focused attention on experimental immunotherapies and the need for more research and patient support