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Susi Seoane, Galician ELA Advocate and Agaela Vice President, Dies in Vigo

Her advocacy helped catalyze policy advances for ELA patients in Spain.

Overview

  • Agaela confirmed on Wednesday that Seoane died in Vigo, after becoming a prominent public voice following her 2021 diagnosis.
  • The Nigrán council declared a day of official mourning with flags at half‑staff and set a minute of silence for Thursday at noon at the town hall.
  • Her decision to donate her organs was disclosed, offering potential benefits to other patients.
  • As Agaela vice president and a ConELA board member, she amplified patient visibility, including a viral moment with Juan Carlos Unzué at Congress in February 2024.
  • Her activism coincided with Spain’s ELA law taking effect in late 2024 and a late‑2025 decree allocating €500 million for support, and she recently accepted the Xunta’s Medalla Castelao on behalf of Agaela.