Overview
- About 1,000 patients, relatives and carers gathered on the Malieveld, with empty wheelchairs symbolizing those too ill to attend.
- Organizers and families urged renewed research funding, a national registry and clearer care pathways for PAIS conditions including long COVID, ME, Q‑fever and Lyme.
- NOS reporting cited by outlets said the roughly €40 million pot for long‑COVID research is close to running out, with final grant proposals due this year.
- Testimonies described severe, often bedbound disability across ages, including an 11‑year‑old who develops high fever after brief exertion.
- Demissionary Health Minister Jan Anthonie Bruijn attended to listen and speak with participants, and coverage reported no new government commitments.