Overview
- Nelson posted a video Tuesday showing 11‑month‑old Ocean and Story eating in their specialised feeding chairs for the first time.
- SMA Type 1 is a severe genetic condition that weakens muscles needed for movement, swallowing, and breathing.
- The twins have received a one‑off gene therapy infusion that can halt further muscle loss but cannot restore strength already lost.
- Daily care remains intensive, with feeding tubes, splints for their feet, and a night‑time breathing machine for Story.
- Nelson is campaigning for newborn SMA screening as the government plans to begin checks in October 2026 in only selected areas of England.