Overview
- The singer posted Instagram footage of her baby laughing with her nan, Janice, alongside a lighthearted comment about the child's “little mullet” hairstyle.
- Nelson has said both twins, Ocean Jade and Story Monroe, have Type 1 spinal muscular atrophy, the most severe form that can be life‑limiting without intervention.
- She disclosed the infants have feeding tubes and now use specially adapted chairs for postural support, which she described as a painful reminder of their challenges.
- The twins have received a one‑off gene therapy infusion intended to help preserve remaining muscle function.
- Nelson told Heart FM she has paused her music career to prioritize care and advocacy as she campaigns for SMA to be included in the standard blood‑spot screening.