Overview
- Nelson posted new photos of her twin daughters at Great Ormond Street Hospital, where both were fitted with leg splints to help correct feet that were pointing inward.
- Ocean and Story have Spinal Muscular Atrophy Type 1, the most severe form of the disease that weakens muscles and can be fatal in infancy without treatment.
- She said she will keep filming her Prime Video series to show the family’s experience and to raise awareness of SMA1.
- After visiting a newborn screening lab in Scotland, she highlighted that Scotland is the first part of the UK to test for the rare condition at birth.
- Her petition for NHS newborn screening for SMA1 has passed 100,000 signatures, which triggers a debate in the House of Commons and could influence earlier testing and treatment policy.