Overview
- Nelson posted a video Tuesday showing 11‑month‑old Ocean and Story trying fruit purée in their specialised feeding chairs for the first time.
- Her daughters have Spinal Muscular Atrophy Type 1, a rare genetic disease that weakens muscles and can be life‑threatening without early treatment.
- Doctors previously told her the girls may never walk, and the twins have received treatment along with supportive care such as foot splints.
- Since the diagnosis, Nelson has urged the NHS to add SMA to newborn screening, pointing to a petition that reached 100,000 signatures and triggered a planned Parliament debate.
- Health Secretary Wes Streeting announced screening for more than 400,000 babies from October 2026, and Nelson warned the initial rollout covers only parts of England, creating what she called a postcode lottery.