Overview
- The singer reported that Ocean and Story now wear leg splints to help correct pointed feet associated with SMA1.
- She continues to share their medical journey and has returned to filming her Prime Video series to raise awareness.
- Nelson has detailed extensive home care, including feeding tubes for both babies and a nighttime breathing machine for Story.
- She has said the twins received a one‑off gene therapy aimed at halting further muscle loss, noting lost function may not return.
- Her campaign has sharpened attention on screening policy, with Scotland planning to add SMA to newborn tests this spring.