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Jesy Nelson Marks First Mother's Day, Rallies Support as SMA Screening Push Clears Debate Threshold

Her petition to add SMA to NHS newborn screening has cleared the 100,000‑signature threshold required for parliamentary consideration.

Overview

  • Nelson hosted a gathering for mothers of children with additional needs and shared an Instagram message saluting “super human” mums on Mother’s Day.
  • She posted new videos showing daughter Story being coaxed to say “Mumma” and both twins practising leg‑movement exercises.
  • Nelson said the delivery of specialised feeding chairs for Ocean and Story, who use feeding tubes, left her in tears as another reminder of the care they require.
  • The twins have received a one‑off gene therapy infusion and continue physiotherapy with specialist follow‑ups at Great Ormond Street Hospital.
  • Nelson has paused her music career to prioritise caregiving and advocacy, arguing that adding SMA to the £1 newborn heel‑prick test would enable earlier treatment.