Overview
- Nelson said the relationship’s “energy wasn’t right” after their twins’ diagnosis, stressing they remain friends and united in co-parenting.
- The twins have received a one-off gene therapy infusion intended to prevent further muscle loss, though it cannot restore function already lost.
- Nelson has launched a petition urging the NHS to include spinal muscular atrophy in the heel-prick blood spot test offered to newborns.
- The UK National Screening Committee has commissioned a reassessment of SMA screening, Scotland plans to begin screening in spring, and Health Secretary Wes Streeting expressed support for examining delays to diagnosis.
- Prime Video will release Jesy Nelson: Life After Little Mix on February 13, documenting her complicated pregnancy and the family’s journey.