Overview
- Multiple outlets, citing an unnamed source in The Sun, report the couple have separated, with both said to remain friends and committed to co-parenting their daughters; representatives have not publicly confirmed the split.
- The twins, Ocean and Story, have been diagnosed with SMA Type 1; Story requires nighttime ventilation and both receive intensive care at home.
- Nelson says the girls received a one‑off NHS‑approved gene therapy infusion at Great Ormond Street Hospital that can prevent further muscle loss but cannot restore function already lost.
- Appearing on ITV’s This Morning on January 20, Nelson discussed her screening campaign with Health Secretary Wes Streeting and urged faster action to include SMA in the heel‑prick test.
- Foster shared an emotional poem calling for universal SMA testing at birth and later posted a video praising Story’s efforts, while Scotland plans to start SMA screening in spring and the UK screening body is reassessing the case.