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Influencer Rita Ephrem Dies at 31 After Ultra-Rare Illness

Her public fight for care spotlighted the gaps in treatment for people with rare diseases.

Overview

  • Rita Ephrem, known as Ritinha, died at age 31 in São Paulo, and her body will be cremated.
  • Doctors identified an uncatalogued autoinflammatory disorder along with an immune deficiency that kept her from producing antibodies.
  • Her condition led to severe complications over the years, including at least seven strokes, dozens of blood clots, more than 20 intubations and five cardiac arrests.
  • She built an audience of more than 300,000 by sharing hospital stays and treatments, and she challenged health insurers when therapies were denied.
  • Messages of condolence poured in from Tatá Werneck, Whindersson Nunes, Gustavo Mioto, Thaeme and Sofia Liberato, and she is survived by her mother, Leila.