Overview
- Parents say Isla-Rae Burton was repeatedly diagnosed with a chest infection or reassured she would grow out of it despite persistent wheezing and breathing trouble from two weeks old.
- After months of attendances, clinicians identified Congenital Pulmonary Airway Malformation in October, a rare condition affecting about 1 in 10,000 births according to Asthma + Lung UK.
- The family reports seven GP appointments and eight hospital visits, including ambulance trips, with early X-rays showing “shadowing” later linked to a collapsed lung.
- Royal Stoke University Hospital says it is in contact with the family and will investigate their complaint through its formal processes.
- Isla-Rae awaits surgery at Birmingham Children’s Hospital as her parents provide round-the-clock care and raise funds after leaving work.