Overview
- Dane’s advocacy features in Ring Every Bell, a short documentary from I AM ALS that is part of a national public service campaign and plans a Washington, D.C. screening.
- The film shows on-camera meetings with Senator Lisa Murkowski and Representative Morgan Griffith as Dane urges lawmakers to reauthorize and fully fund the ACT for ALS.
- Dane warns in the footage that without full funding, people using investigational therapies could lose access to them, underscoring what is at stake for patients.
- ACT for ALS, passed in 2021 to fund neurodegenerative disease research and support, is set to expire on September 30, 2026 and has been reintroduced in the House.
- Before his death, Dane joined I AM ALS’s Push for Progress to expand treatment access and seek $1 billion in new federal funding, and the film includes community voices such as fellow patient Dan Tate Jr., who describes gains from an experimental drug.