Particle.news
Download on the App Store

Emma Heming Willis’ New Book Details Bruce Willis’ Advanced Care and Brain-Donation Plan

She uses her family’s experience to spotlight daily realities of frontotemporal dementia and to call for stronger support for caregivers.

Overview

  • The caregiving guide, Eine ganz besondere Reise (The Unexpected Journey), was published this week and is framed as a practical lifeline for families facing dementia.
  • Heming Willis discloses that Bruce Willis now lives in a nearby, specially prepared residence with round-the-clock professional care.
  • She reports that he can no longer communicate reliably and that she is responsible for all decisions concerning his health and daily needs.
  • Her book outlines home-safety steps such as securing doors, adding a stove child lock, locking the fridge and freezer, and removing black items that dementia patients may perceive as holes.
  • She says she plans to donate his brain after his death to support research into frontotemporal dementia and related neurodegenerative diseases.