Overview
- Emma Heming told Today that Bruce Willis is being cared for at home and is "surrounded by support and love," and that the family is doing everything they can given his condition.
- Willis retired from acting after an aphasia diagnosis in 2022 and his family confirmed in 2023 that the illness progressed to frontotemporal dementia, which has left him with a severe loss of communicative ability.
- Heming is the primary caregiver and says the family has remained unusually united, including their daughters and ex-wife Demi Moore, and has been open with the children about the diagnosis.
- In March 2026 Heming launched the Emma and Bruce Willis Fund for Dementia Research and Caregivers and earlier co-founded Make Time Wellness, moves she says will fund research, public education and practical help for caregivers.
- Advocates note that frontotemporal dementia typically appears between about 45 and 65, has no cure, and that Heming’s emphasis on caregiver self-care and new funding could improve resources and awareness for families facing rare dementias.