Overview
- Released Feb. 9 on Netflix, the documentary centers on epidermolysis bullosa (EB), a rare, life‑threatening genetic skin disorder that causes fragile, blistering skin and currently has no cure.
- Footage from Vedder’s Oct. 23–24, 2023 solo benefit shows at Seattle’s Benaroya Hall is intercut with scenes of patients, families, clinicians and researchers.
- Canadian director Matt Finlin shapes a music-driven narrative featuring an original score by indie band Broken Social Scene.
- Eddie and Jill Vedder co-founded the EB Research Partnership in 2010 after a family connection to the disease, and the nonprofit has become a major funder of EB research.
- EB Research Partnership CEO Michael Hund says the film highlights ongoing scientific progress and the organization’s goal to help deliver a cure by 2030.