Overview
- Chris Johnson publicly disclosed this week that he has amyotrophic lateral sclerosis and said the disease has moved faster than he expected, leaving him dependent on an eye-controlled speech device.
- He described first noticing right-hand weakness, receiving a diagnosis after testing, and being told existing medication might extend life only modestly.
- Johnson asked followers to “bring back” the 2014 Ice Bucket Challenge, and former teammates and public figures have posted challenge videos and nominations in response.
- The renewed campaign has funneled early donations to ALS research and care, including a fund at Massachusetts General Hospital, while Johnson also reports participation in an experimental clinical trial.
- The Ice Bucket Challenge originally raised roughly $220 million for ALS research in 2014 and the current surge could increase visibility for trials, specialized care and funding for patients like Johnson.