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Brooke Eby, TikTok ALS Advocate, Dies at 37

Her public, often humorous chronicle of progressive ALS mobilized donors, created peer networks, left digital resources for people with the disease.

Overview

  • The ALS Network announced on Thursday that Eby died at 37 from complications of amyotrophic lateral sclerosis, calling her an extraordinary advocate and community builder.
  • She was diagnosed with ALS in March 2022 at age 33 after years of unexplained symptoms and spent the next four years documenting her illness publicly.
  • Posting as @limpbroozkit on TikTok and Instagram, Eby amassed hundreds of thousands of followers and used frank, comedic videos to show how ALS affects speech, breathing and mobility.
  • Her advocacy translated into concrete action: Target ALS reported she had raised more than $1 million for research by July 2025, she founded the peer-support group ALStogether, and she worked with Silverts on an adaptive clothing line that sent proceeds to Team Gleason.
  • Eby publicly tracked key clinical steps in her decline—sharp breathing decline in mid‑2025, feeding‑tube placement later that year, bulbar symptoms by January 2026 and markedly worse speech by September 2026—and leaves a lasting online ‘visual diary’ intended to guide and support others with ALS.