Overview
- Vandeweert’s death was confirmed Wednesday in a statement shared by Flemish broadcaster VRT NWS that cited production company Boundbreakers.
- Boundbreakers remembered him as an inspiring figure and offered condolences to his parents, sister Amber, and friends in its public statement.
- Diagnosed with progeria as a child, Vandeweert far exceeded the disorder’s typical life expectancy; progeria is an extremely rare genetic condition that causes rapid aging and has no cure.
- KRC Genk paid tribute to Vandeweert and said his funeral is scheduled to take place on the club’s pitch, a first for the club, and will be open to the public.
- Vandeweert built a wide public profile by publishing a memoir at 15, documenting life with progeria on social media for tens of thousands of followers, and appearing with his sister Amber in the documentary How to Be Alive, which expanded awareness of the condition and has driven community mourning.